Ashley Jeanie

Ashley was diagnosed with CF when she was two days old.  She had experienced too many  hospital stays and med treatments since then. Ashley was not eligible for a lung  transplant, and fought End Stage Cystic Fibrosis. Despite being on hospice at the end, she still appreciated and loved life, even to her last day.

This young Warrior is  currently facing End Stage Cystic Fibrosis, and we  are thrilled to be able to reach out to Phoebe in this way. Those of us with the Foundation greatly admire her courage, strength and  determination to fight this disease with the tremendous vigor she has  shown.

At  the age of 40, Cystic Fibrosis Warrior Amanda Trimper, possessing the mutated CF genes DF508 and R117H 5T, is at End Stage. A mother of two children, she  is not eligible to receive a lung transplant, a result of her being  cultured with the bacteria B. Cepacia, and is now in Hospice.

On May 15, 2019, I had lunch with Amber in her town of La Porte, Indiana.  That simple lunch inspired me to take a series of road trips across the United States to meet 30 CF patients on journeys that covered more than 27,000 miles. 

To say the least, Amber touched me deeply.  She has been my inspiration.

Crystal's CF trials commenced materially before her first birthday. 

The phrase stating you cannot keep a good man down applies absolutely to Crystal, a veteran of two ECMO  treatments, coupled with a seven-hour double lung and heart transplant surgery.  

Crystal is a Warrior in the most complete of terms.